Core Functions and Forms of Complex Health Interventions: A Patient-Centered Medical Home Illustration | Journal of General Internal Medicine
Perez Jolles, M., Lengnick-Hall, R., Mittman, B.
Despite policy and practice support to develop and test interventions designed to increase access to quality care among high-need patients, many of these interventions fail to meet expectations once deployed in real-life clinical settings. One example is the Patient-Centered Medical Home (PCMH) model, designed to deliver coordinated care. A meta-analysis of PCMH initiatives found mixed evidence of impacts on service access, quality, and costs. Conceptualizing PCMH as a complex health intervention can generate insights into the mechanisms by which this model achieves its effects. It can also address heterogeneity by distinguishing PCMH core functions (the intervention’s basic purposes) from forms (the strategies used to meet each function). We conducted a scoping review to identify core functions and forms documented in published PCMH models from 2007 to 2017. We analyzed and summarized the data to develop a PCMH Function and Form Matrix. The matrix contributes to the development of an explicit theory-based depiction of how an intervention achieves its effects, and can guide decision support tools in the field. This innovative approach can support transformations of clinical settings and implementation efforts by building on a clear understanding of the intervention’s standard core functions and the forms adapted to local contexts’ characteristics.
Involving Latina/o parents in patient-centered outcomes research: Contributions to research study design, implementation and outcomes. | Health Experiences Journal
Pérez Jolles, M., Martinez, M., Garcia, SJ, Stein, G., MPG, Mentor Parent Group., Thomas, K.
Managerial Strategies to Influence Frontline Worker Understanding of Performance Measures in Nonprofit Child Welfare Agencies. | Nonprofit and Voluntary Sector Quarterly
Pérez Jolles, M., Collins-Camargo, C., McBeath B., Bunger, A., Chuang E.
Levels and Consequences of Embeddedness among Nonprofit Human Service Organizations: National Survey Evidence from Child Welfare. | Human Service Organizations
Bunger, A., McBeath, B., Collins-Camargo, C., Chuang, E., Perez Jolles.
Does caregiver participation in decision making within child welfare agencies influence children’s primary and mental health service use? | Child: Care, Health and Development
Pérez Jolles, M., Wells, R.
Fostering Activation Among Latino Parents of Children With Mental Health Needs | An RCT. Psychiatric Services
Thomas, KC., Livas Stein, G., Williams, C.S., Perez Jolles, M., Sleath, B.L., Prandoni, J., Martinez, M., Garcia, S.J., Guzman, L., Williams, C.E, Morrissey, J.
Caregiver involvement in behavioural health services in the context of child welfare service referrals: a qualitative study | Child & Family Social Work
Human service agencies serve a growing number of adults with behavioural health needs. Despite these agencies' key role in identifying need and facilitating services, many individuals do not receive care or end services prematurely. Few studies have explored the experiences of families referred to behavioural health services by such agencies or the extent to which families' perceptions of service need align with those of treatment providers and frontline workers. This study presents findings from a qualitative study of caregivers involved with child welfare agencies who were referred to behavioural health services. Researchers reviewed agencies' case records and conducted in-depth interviews with 16 caregivers, 9 child welfare caseworkers and 12 behavioural health treatment counsellors. Findings suggest that when deciding to engage in services, caregivers weigh not only their individual and family behavioural health needs but also potential agency intervention, including loss of child custody. Many professionals reported that involvement with a child welfare agency hindered the caregiver's disclosure of behavioural healthcare needs. Implications for managers and practitioners are discussed.
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use? | Child: Care, Health and Development
Many children in contact with child welfare agencies do not receive needed health services. These agencies have used participatory decision making (PDM) practices as a way to increase families' use of recommended services. However, we lack evidence of whether caregiver participation in PDM increases children's use of health services. This study uses a national sample of children involved with child welfare to compare their health service use between those children serve through a PDM practice and those who did not experience it.
Cultural and Linguistic Adaptation of a Multimedia Colorectal Cancer Screening Decision Aid for Spanish-Speaking Latinos | Journal of Health Communication
As the United States becomes more linguistically and culturally diverse, there is a need for effective health communication interventions that target diverse, vulnerable populations, including Latinos. To address such disparities, health communication interventionists often face the challenge to adapt existing interventions from English into Spanish in a way that retains essential elements of the original intervention while also addressing the linguistic needs and cultural perspectives of the target population. The authors describe the conceptual framework, context, rationale, methods, and findings of a formative research process used in creating a Spanish-language version of an evidence-based (English language) multimedia colorectal cancer screening decision aid. The multistep process included identification of essential elements of the existing intervention, literature review, assessment of the regional context and engagement of key stakeholders, and solicitation of direct input from target population. The authors integrated these findings in the creation of the new adapted intervention. They describe how they used this process to identify and integrate sociocultural themes such as personalism (personalismo), familism (familismo), fear (miedo), embarrassment (verguenza), power distance (respeto), machismo, and trust (confianza) into the Spanish-language decision aid.